San Diego Union-Tribune

Parents dream of a cure for Sanfilippo syndrome, a childhood dementia that comes with a ‘death sentence’

As parents watch their kids transition from infancy into childhood, it’s common to look for signs of progressing development. Are they sleeping through the night? Can they remember new words and use ...

Mum speaks of 'shoot of hope' for boy, 8, with rare 'childhood dementia' condition

Cody Carroll has Sanfilippo syndrome - which is often called "childhood dementia" because the symptoms are similar ...
RAPS

FDA Issues Sanfilippo Syndrome Drug Development Guidance

The US Food and Drug Administration (FDA) on Tuesday issued draft guidance making recommendations to drugmakers looking to develop products to treat the rare disease mucopolysaccharidosis type III ...
Newsweek

Mom’s Agony for Daughter Stuck as a ‘Forever Toddler’ After Rare Diagnosis

See more of our trusted coverage when you search. Prefer Newsweek on Google to see more of our trusted coverage when you search. Holding back tears while tucking her four-year-old into bed, Erin Stoop ...
Los Angeles Times

Parents dream of a cure for a childhood dementia that comes with a ‘death sentence’

As parents watch their kids transition from infancy into childhood, it’s common to look for signs of progressing development. Are they sleeping through the night? Can they remember new words and use ...